MD Anderson and the First Infusion

This place is like a fortress. It’s spoken so highly about around the world that you think you’ve arrived at the pearly gates, which hopefully you haven’t yet.

Each type of cancer has has their own area and team of nurses/doctors. It’s easy to see who has the same type of cancer you do and identify their symptoms. You can also see in their faces where they are emotionally. It’s very draining but one of the very few places where there’s true empathy. Bonus, they had good chemo friendly food and even a chick-fil-a on site (always a highlight).

The first day is always an endless stream of tests, blood work, and doctor’s visits. During my initial visit in March doctors had hoped to have me enrolled in a late stage trial. The trial would mean not paying and a good chance of success as most of the kinks were worked out in earlier trials. One of the conditions of being in the trial was to not have brain tumors to be in the study. No problem I thought confidently. They only found them in my lungs. A few weeks later I was scheduled for an MRI brain scan and to begin the trial treatment infusions just a few days later over Spring Break. The MRI scan usually takes 30-40 minutes where your head is completely surrounded and you can’t move. High pitched sounds echo in your ears. The only way to not panic is to meditate and leave the world behind. Sitting on the doctor’s table I was anxious about starting chemo infusions. What would it feel like? What reactions would I have? When would I see results?

My original doctor was on vacation and another took over. She had a third doctor come into the room to explain to me that I wouldn’t be receiving treatments that day and a 3mm brain tumor had been found. Didn’t qualify for the original study and another required a larger size brain tumor. The suggestion was to begin treatments in the usual way. I wanted to begin these right away.

During this time Brandon was also still looking for another job andwould soon be changing companies. This meant changing insurances and having a new set of deductibles to meet. I pushed to get the first treatment round covered by his old company. This gave me relief as I was doing something. With MD Anderson being in southeast Houston and us living 2.5 hour away I asked to have my infusions done at home and continue to see doctors at both places. Scans and treatment plans would all be done at MD Anderson.

The first infusion was scary. I arrived half an hour before they opened and saw a room of 60 reclining chairs waiting for the day’s patients. They came in slowly with the same look of resignation. They dozed off or stared into nothingness. Somehow those thoughts come into your head of why am I here, what did I do to deserve this, I’m too young to be here. Those questions and thoughts have no answers. During the first infusion I stared at the clock counting the minutes till I’d be through. Till I could say that I did it, I survived my first round.

After the first round I made it a point to make eye contact with someone else receiving their infusion and smile. It may not have been much but it said that together we’ll make it through this three hour hell.

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